An Invitation to Participate in Patient Studies

The Hypoparathyroidism Association has endorsed patient participation in patient studies for several years.  Participation not only benefits medical researchers and patients, it helps increase our knowledge and understanding of hypoparathyroidism, a rare medical disorder which has invaded many of our lives.

There are currently two patient studies underway.  One is being conducted by Dr. Karen Winer and the National Institutes of Health and the other by Dr. John Bilezikian,  Dr. Mishaela Rubin and Columbia University College of Physicians and Surgeons.  We hope others will follow, leading to a more effective FDA approved regime for treating Hypoparathyroidism

In addition, there is an ongoing patient survey being conducted by Dr. Jim Norman, of Tampa, Florida, for all surgical onset Hypoparathyroidism patients. This particular survey specifically covers the anticipated and more often unanticipated consequences of surgery on a patient’s thyroid gland or parathyroid glands.